End Kidney Deaths Act Individual Supporters
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Dr. Robert Montgomery, MD
Transplant Surgeon, Director of the NYU Langone Transplant Institute,
Heart Recipient -

Dr. Sally Satel, MD
Psychiatrist, Yale School of Medicine,
Kidney Recipient -

Prof. Steven Levitt, PhD
Economist, U Chicago, Freakonomics Radio Host & Author
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Prof. Abigail Marsh, PhD
Neuroscientist & Psychologist, Georgetown University,
Expert on altruistic kidney donation -

Prof. Steven Pinker, PhD
Harvard professor and leading cognitive psychologist
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Prof. Al Roth, PhD
Nobel Prize–winning economist, Stanford University
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Abie Rohrig
Chief of Staff, Coefficient Giving; Non-Directed Kidney Donor
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Dr. Thomas Peters, MD
Transplant Surgeon, Chair American Society Transplant Surgeons Foundation
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Prof. Frederike Ambagtsheer
Organ Trafficking Researcher at Erasmus University
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Dr. Sandip Kapur, MD
Chief of Transplant Surgery, Weill Cornell Medicine
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Dr. Joseph Levanthal, MD
Surgical Director, kidney and pancreas transplant program, Northwestern University
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Prof. Janet Radcliffe Richards, PhD
Professor of Practical Philosophy, University of Oxford Bioethicist
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Crissy Perham
Olympic swimmer and kidney donor, two-time gold medalist
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Chris Klug
Olympic snowboarder and liver recipient, silver medalist
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Dr. John Roberts, MD
Transplant surgeon, UCSF; former president of OPTN/UNOS
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Dr. Arthur Matas, MD
Transplant Surgeon & Professor, University of Minnesota
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Dr. Louise B. Andrew, MD, JD
Emergency medicine physician and attorney
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Dr. Glenn Chertow, MD
Nephrologist and professor of health policy, Stanford University
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Dr. Vaughn Whittaker, MD
Transplant surgeon, Veterans Affairs Bronx and Harlem Hospital
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Marian Charlton, RN, SRN, CCTC
Clinical manager, organ transplant program, Hackensack Meridian Health
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Dr. Kristopher P. Croome MD, MS
Transplant surgeon and professor, Mayo Clinic Florida
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Dr. Robert R. Redfield III, MD
Chief of transplantation, UC Irvine Health
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Dr. Juan Palma-Vargas, MD
Surgeon, Maine Health
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Dr. Giuliano Testa, MD, MBA
Chief of abdominal transplant, Baylor University Medical Center; Time 100 most influential people (2018)
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Dr. Antonio Di Carlo, MD
Transplant Surgeon, Temple University
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Dr. Christopher Marsh, MD
Chief of transplant surgery, Scripps Clinic
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Dr. James Rice, MD
Nephrologist, Scripps Clinic
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Dr. Anthony Watkins, MD
Transplant surgeon, USF/Tampa General Hospital
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Dr. Joshua Lee, MD
Medical director of transplant, Immucor
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Dr. Jonathan Fisher, MD
Transplant, hepatobiliary, and pancreatic surgeon, Scripps Clinic Medical Group
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Harold Mintz
First living organ donor to a stranger in the United States
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Prof. Kim Krawiec, JD
Law Professor, University of Virginia
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Dr. Greg Hess, MD
Kidney recipient, emergency physician, and health economist
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Dr. Matt Harmody, MD
Emergency medicine physician and non-directed kidney donor
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Dr. Patrick Buddle, MD
Kidney donor and physician in physical medicine and rehabilitation
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Dr. Nancy J, Auer, MD
Transplant recipient and former president of the American College of Emergency Physicians and Washington State Medical Association
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Dr. Ted Harrison, MD MBA
Kidney recipient, emergency physician, medical researcher
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Dr. Jon Friedman, MD
Chief Medical Officer, Transplant Genomics
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Dr. Scott Alexander, MD
Non-directed kidney donor and psychiatrist; writer of Astral Codex Ten
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Dr. Robert Gutman, MD
Nephrologist and professor, Duke University
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Dr. Sander Florman, MD
Transplant Surgeon, Mount Sinai Hospital
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Dr. Tiffany Caza, MD
Non-Directed Kidney Donor; Nephropathologist, Arkana Laboratories
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Dr. Ron Shamaskin MD, DDS
Non-Directed Kidney Donor, Anesthesiologist
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Dr. Greg Warren, MD
Nephrologist, Roanoke-Chowan Hospital
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Dr. W. Heinrich Wurm, MD
Non-Directed Kidney Donor, Anesthesiologist, Professor, Tufts Medical School
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Dr. Amit Alam, MD
Cardiologist, NYU Langone Hospital
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Dr. Michael J. Goldstein, MD
Director of abdominal organ transplantation, Hackensack University Medical Center
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Dr. Dirk Slaker, MD
Transplant and hepatology, National medical director, Optum
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Dr. Dan Morhaim, MD
Emergency physician and former Maryland state legislator (1995–2019), George Washington University
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Dr. Frank McCormick, PhD
Former Director of Economic and Financial Research, Bank of America
Leading Expert on Kidney Donation Economics -

Dr. Robert Fisher, MD
Medical director, American Foundation for Donation and Transplantation
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Dr. Philip Held, PhD
Adjunct Lecturer, Stanford School of Medicine
Leading Economist on Kidney Compensation -

Senator John Albers
Kidney donor and Georgia state senator
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Will Albers
Kidney Recipient
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Traci Brislin
Kidney Donor; Chief Judge, Fayette Family Court in Lexington, Kentucky
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Dr. Mark H. Hansen, PhD
Non-directed kidney and liver donor; Research Forester (retired)
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Dr. T. H. Wyman, PhD
Non-directed kidney donor, Senior scientist forensic genomics scientist
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Prof. Avi Dor, PhD
Director of health economics and health policy PhD programs, George Washington University
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Sita Slavov
Professor of public policy, George Mason University
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Alan Viard, PhD
Senior Fellow Emeritus, AEI
Leading Tax Expert
Harvard, PhD -

Karen M Miller, RN, BSN, CCTC
Lead Kidney Transplant Coordinator, University of Wisconsin-Madison
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Kari Rancourt, RN
Non-Directed Kidney Donor, Transplant Coordinator, Hartford Hospital
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Jessica Coleman RN, CCTC
Living donor and paired exchange coordinator, AdventHealth Colorado
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Prof. Luke Semrau, PhD
Non-Directed Kidney Donor; Professor of Moral Philosophy, Bloomsburg University
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Prof. Nathan B. Oman, JD
Professor, Center for the Study of Law and Markets at William & Mary
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Dylan Matthews
Vox Journalist; Non-Directed Kidney Donor
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Penny Lane
Independent Filmmaker, Creator of the film “Confessions of a Good Samaritan” about her Nondirected Donation
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Prof. Alex Tabarrok, PhD
Chair of Economics Department, George Mason University
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Prof. Julia D. Mahoney, JD
UVA Law Professor | Government Finance, Constitutional Law, and Nonprofit Organizations.
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Peter Jaworski, PhD
Professor of ethics, Georgetown University
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Kurt Schuler
Non-Directed Kidney Donor, Economist, Office of International Affairs, U.S. Department of the Treasury
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Jeremiah Johnson
Non-Directed Kidney Donor; Political Director for the Center for New Liberalism and co-founder of the Neoliberal Project.
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Molly McCarthy
Three time Kidney Recipient
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Ike Brannon
Economist and Senior Fellow, Jack Kemp Foundation
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Prof. Mario Macis, PhD
Professor of Economics at the Johns Hopkins Carey Business School
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Julio Jorge Elías
Professor of Economics at Universidad del CEMA, Argentina
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Josh Morrison
Non-Directed Kidney Donor; President, One Day Sooner, Founder of Waitlist Zero & the Rikers Debate Project
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Glenna Frey
Non-Directed Kidney Donor; Co-Founder and Executive Director of Kidney Donor Conversations
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Gracyn Lord
Student, Georgetown University's McDonough School of Business
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Evan Roden
Youth Coalition for Organ Donation, Biomedical Engineer
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Regina Bullock
Kidney Recipient, Educator & Founder of Catalyst for Kidney Care
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Stephen Dubner
Freakonomics Radio host, author, and journalist
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Harvey Mysel
Kidney Recipient; President of the Living Kidney Donor Network
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Carol Offen
Directed Kidney Donor; Kidney Donor Help Founder
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Trisha Phillips
Kidney donor and executive director, Multicultural Miracle Donor Foundation
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Luis Mayen
Kidney donor, Vice President, Donor Network West
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Prof. Nancy Marlin, Ph.D
Kidney Recipient, Provost and Professor, San Diego State University
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Christine Fiechter
Executive Director, Emergency Medical Services Gives Life
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Brian Martindale
Non-directed kidney donor and executive director, Kidneys for Kids
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Brian Darnell
Kidney donor and kidney transplant coordinator, Arkansas Children’s Hospital
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Jeramy Davies
Kidney & Bone Marrow Donor, Triathlete
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Hartmut Fischer
Economic Professor, University of San Francisco
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Patricia Graham
Non-Directed Kidney Donor; Founder of One Kidney Clubs, Nurse, NKDO Mentor
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Laurie Dickinson Lee
Non-Directed Kidney Donor; “Donor Diaries” Podcast Host, CEO of Swift Passport Services
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Michael Lollo
Non-Directed Donor; NKDO Board Member; Modify NOTA Team Member; Retired NYPD Detective
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Sally McCartin
Kidney Donor; Kid-U-Not Living Organ Donor Fund President
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Virginia Postrel
Directed Kidney Donor; Political and Cultural Writer
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Jen Reeder
Directed Kidney Donor; Founder of Rock 1 Kidney, Journalist
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Reed Shafer-Ray
Non-Directed Liver Donor; Founder and CEO, Mountaintop
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Aaron Strauss
Non-Directed kidney donor; Columbia University Program Director, Open Labs
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Matt Cavanaugh, PhD
Non-Directed Kidney Donor; Ran 12 Marathons in 2023; Professor of Practice with Arizona State University
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Prof. Mike Davis, PhD
Economics Professor, Cox School of Business, Southern Methodist University
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Steve Wilson
Non-Directed Kidney Donor; NKDO mentor; Financial Advisor
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Rachel Bennett Steury
Non-directed Kidney Donor, Communications Coordinator, and author of The Real Rachel BS
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Mindy Davidson
Non-Directed Kidney Donor; NKF Peer Mentor
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Jackie Hutz
Co-Founder, Team Fishguy Transplant Foundation
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Roberta Reed
Mother of a Kidney Patient; Recipient of the NKF 2023 Salick Award for Patient Advocacy
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Debi Kahn
Directed Kidney Donor; NKDO Mentor; NKF Walk Chair Member
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Beth Vazquez, LMSW
Non-Directed Kidney Donor, Mental Health Clinician at the Institute for Family Health
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Cody Marchant
Non-Directed Kidney Donor
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David MJ Schwartz, MSW
Spousal Care Partner; Prospective Paired Donor
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Julie Kellman
Directed Kidney Donor
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Prof. Daniel F. Stone
Economics at Bowdoin College
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Kathie Neyman
Non-Directed Kidney Donor; Civic Volunteer
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Tom O’Driscoll
Non-Directed Kidney and Liver Organ Donor; 10-Time Ironman Finisher
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Jim Plante
Kidney Recipient; CEO, Klotho Therapeutics; Founder of Thynk Capital & the Foundation for Kidney Transplant Research
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Michele Dabal
Liver Transplant Recipient; Advocate
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Jack Parmenter
Non-Directed Kidney Donor
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Keith McCullough
Directed Kidney Donor; NKDO Mentor
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Rob Fox
Directed Kidney Donor; Project Estimator; US Army Veteran
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Cynthia Rangel
Program Specialist, Tampa General Hospital Transplant Institute
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Julia Clark, PhD
Directed Kidney Donor; Founder of NOMAD Science
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Angela Totten
Directed Kidney Donor, Hospice and Palliative Care Nurse
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Sarah Benson
Directed Kidney Donor
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Rob Gehring
Non-Directed Kidney Donor; Founder Fixed Performance Inc
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Maureen Tomlin
Non-Directed Donor; NKDO Mentor
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Chelsea Barker
Non-Directed Kidney Donor; NKDO Mentor
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Brynnan Whaley
Directed Kidney Donor; National Kidney Foundation peer mentor
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Thomas Kelly, PhD
Non-Directed Kidney Donor; Political Scientist; Co-Founder of Waitlist Zero
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Orlando Torres
Kidney Recipient; Renal Coach
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Jonathan Haydak
Kidney Recipient; PhD Student, Icahn School of Medicine at Mount Sinai
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Andrea Coleman
Directed Kidney Donor
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Mark Scotch
Non-Directed Kidney & Liver Donor; Founder of The Organ Trail & A Kidney Donation Journey
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Brian Temple
Kidney Recipient; Knowledge Management Program Manager at the U.S. Army Corps of Engineers
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Chris Sullivan
Non-Directed Kidney Donor; Sales Leader/ Executive Sales Coach; Vice President Kidney Donor Athletes
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Megan Sherod
Directed Kidney Donor; Advocate; Health Educator
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Bill & Helen Mills
Kidney Recipients; Leaders of Saddleback Kidney Support Group
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Suzanne Verge
Non-Directed Kidney Donor; NKDO mentor
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Lisa Lombardini Shenette
Non-Directed Kidney Donor
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Danel Kuhlmann
Directed Kidney Donor; Non-Directed Liver Donor
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Douglas LeGear
Kidney Recipient, Painter, Golfer
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Bruce Hanley
Non-Directed Living Kidney Donor; NKDO Mentor
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Ava Kaufman
Heart Recipient; Founder & Executive Director of Ava's Heart
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Victoria Threadgould
Non-Directed Kidney Donor; NKDO mentor
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Jeff Byron
Non-Directed Donor, Former California Energy Commissioner
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Sravan Bhamidipati
Advocate; Software Engineer
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Richard McGonnigal
Advocate and Entrepreneur
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Ryan W. Cragun
Non-Directed Kidney Donor
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Douglas Penrod
Non-Directed Kidney Donor; Kidney Transplant Coordinator; Registered Nurse
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Betsy & Peter Snow
Non-Directed Kidney Donors; World Travelers
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Nancy Dickinson
Transplant Village; Wife of a Liver Recipient and Mother of a Non-Directed Kidney Donor
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John Dickinson
Liver Recipient; Chairman of Transplant Village
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Winston Sale
Directed Kidney Donor; Federal Banking Regulator
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Vadrien Alston
Kidney Recipient
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Sophia Jackson
Non-Directed Kidney Donor
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Rep. Manny Rutinel
Colorado State Representative; Attorney
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David Krissman
Creator of “The Great Social Experiment” and “Another Chance”
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James Montavon
Non-Directed Kidney Donor; Epidemiologist
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Angela Miskolci
Living donor kidney coordinator, RN
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Tom Duncan
Non-Directed Kidney Donor
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Hilary Baude Steinour
Non-Directed Kidney Donor; Completed 10 Marathons & two Ironman Competitions in 2023
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Mark McIntosh
Kidney Recipient, Managing Editor of Drive for Five Network
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Angela Gaskell
Kidney Recipient
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Sharron Rouse
Kidney Recipient; Founder of Kindness for Kidneys International, Inc.
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Shai Robkin
Non-Directed Kidney Donor
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Russell Powell
Non-Directed Kidney Donor
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Catherine Hess
Sister of two living kidney recipient; Former national nonprofit health policy leader
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Pastor Nick Gentile
Kidney & Liver donor; Founder of Compassion Match
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James Stacey Taylor
Associate Professor of Philosophy at The College of New Jersey
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Jeff Blumenfeld
Kidney recipient; Colorado General Assembly Kidney Disease Prevention and Education Task Force
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Molly Gerken Ruane
Nurse Practioner; Mother of a recipient; Wife of a donor; Secretary, Kidneys for Kids
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Hannah Radacz
RN, BSN, CEO; Malachi’s Miracle Foundation, Inc.
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Ellis Mirsky
Kidney Recipient; Attorney; Board, National Kidney Donation Organization & The NY Bar Foundation
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Michael Brown
Living Kidney Donation Advocate; Retired Food Executive
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Armand Halter
Kidney Transplant Recipient; National Kidney Foundation, Advocate & Peers Program Mentor
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Gitika Gorthi
Founder of Columbia University's Kidney Disease & Screening Awareness Program Chapter; Columbia University Student
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Robin Stevens
Dialysis Patient Awaiting a Transplant
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Karen Lavette Cooper
Awaiting a Kidney Transplant; Kaiser University Social Worker
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Nicole Hinchey
Kidney Donor at SHARP Memorial Hospital
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Emily Polet-Monterosso
Kidney Donor; Volunteer Coordinator, NKDO; Kidney Donor Athletes Board of Directors
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Barb Lundberg
Kidney Recipient
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James “Uncle Jim” Myers
Kidney Recipient
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Lynn Bolduc, RD
Non-Directed Kidney and Liver Donor
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Donald Moy (Recipient) and Christopher Tormey (Donor)
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Maureen McDonald
Living Donor Kidney Recipient
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Glenda Weygant
Non-Directed Kidney Donor; President - MBA of SWFL
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Donna Tissot
Kidney Advocate
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Cortnee Agan-Trujillo
Directed kidney donor; advocate; paramedic
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Jodi Elliott
Non-Directed Kidney Donor
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Robert Goldfarb
Non-Directed Kidney Donor, CPA Rape Crisis Counselor
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S. Dana Seccombe
Author - Kidneys For All; Partner of Dialysis Patient; Former Senior VP, Hewlett Packard
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Mary T. Dawson
Kidney Recipient
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Scy Yoon
Niece of a Kidney Patient; Painter
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Martinez Majors Jr.
Information Technology & Services Professional; Dialysis Patient awaiting a kidney transplant
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Adder Oaks
Non-Directed Kidney Donor; Teacher
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Stan Rose, PhD
Kidney transplant recipient; CEO, Rose Ventures; Life sciences serial entrepreneur, board member, author
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Jason LeBlanc
Non-Directed Kidney Donor
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Tiffiny Mitchell
Non-Directed kidney donor; Former Oregon State Representative
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Keith Plummer
Kidney Recipient and advocate for several kidney organizations
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Lorrinda Gray-Davis
Liver Recipient; President of Transplant Recipients International Org; Co-lead of the Honor the Gift Coalition
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Bill Barthen
Non-Directed Kidney Donor; Wisconsin National Guard Supervisory Supply Specialist
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Lindsay Gutierrez
Non-directed liver and kidney donor, veteran, social worker, and Ms. Veteran America
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Sarah Kamaras
Directed Kidney Donor; Freelance Producer / Director
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D. Ward Kallstrom
Kidney Recipient; Attorney
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Emily Wise
Non-Directed Kidney Donor; Elementary School Teacher; NKDO Mentor
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Steve Cicci
Kidney patient in need of a kidney
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Grant Bille
Pharmacist and Kidney Donation Advocate
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Michelle Hughes
Kidney Donor for Michelle’s Son
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Shannon Mulroy
Nondirected Kidney Donor; Mother of a Kidney Recipient; Advocate at "Kidney Solutions"
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Rebecca Greller
Kidney Donor & Early Education Enthusiast
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Jesse Gitter
Nondirected donor
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Theresa Degard
Mother of Kidney Patient in Need of Kidney.
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Jessica Gines
Advocate for Living Kidney Donation
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Bill Soloway
Heart Recipient; Dir. of the Masonic Blood + Organ Donor Prog., Grand Lodge of PA; Pres. of Transplant Recipients Internat'l Org., Phila. Chapter
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Shawn Maldon
Kidney recipient; Former Mayor in MD; CEO of Maldon Language Interpreters; Founder of The Maldon Foundation
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Valerie Parriett,
Directed Kidney Donor; Founder, One Kidney Club Las Vegas
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David Varacchi
Directed Kidney Donor
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Erik & Marty Lostrom
Erik is a kidney recipient, and Marty is Erik's wife.
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Wilson Du
Kidney Recipient & Advocate, Health Coach specializing in Kidney Patients
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Brian Tiell
Creative Director Next Step Next One Campaign
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James Urtel
Kidney Recipient; Transplant Advocate
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Jennifer Campbell
Prospective Non-directed Donor; Advocate for Saving Lives
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Prof. Ryan McDevitt, PhD
Economics professor, Duke University; expert in health economics and dialysis
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Theron Hayes
Non-Directed kidney donor
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Alexis Miller
Non-Directed kidney donor
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Joe Haynie
Non-Directed Kidney Donor; National Kidney Donation Organization Community Ambassador
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Prof. Walter Block
Economics Professor, Loyola University
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Daniela Shuman
Analyst at RISC, University of Chicago
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Ruby Rorty
Senior Analyst, Center for RISC at UChicago
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Irene Tsatsos
Non-Directed Kidney Donor
The Coalition to Modify NOTA
Founded by 4 Non-Directed Kidney Donors Who Gave to Strangers
4 donors. 4 lives saved. Now we're advocating to save thousands.
We gave kidneys to strangers. We have tried multiple strategies to end the kidney shortage.
The End Kidney Deaths Act is our plan to end the kidney shortage.
Lives are being lost as we tarry.
Elaine Perlman
For all media and other inquiries, contact Elaine at: ElainePerlman@modifynota.org
Elaine Perlman is a mentor for those who wish to donate and is the President of the Coalition to Modify NOTA and. the Executive Director of Waitlist Zero. Elaine and her son Abie donated their kidneys to strangers. She is leading the team that is aiming to pass the End Kidney Deaths Act so that we could begin saving the lives of the 10,000 Americans who currently die on the kidney waitlist. Elaine also led the passage of two laws, the federal Honor Our Living Donors Act that passed in February of 2026 but has not yet been enacted by HHS. This law will make the federal low income donor selection process focused solely on donor income instead of the organ recipient’s income, an illogical rule that was in place for over forty years. In addition, Elaine was the lead champion of the New York State Living Donor Support Act that passed in December of 2022 and was enacted in October of 2025. This law makes New York State the (by far!) best state for the full reimbursement of all living kidney donors who donate to New Yorkers. Elaine launched a kidney chain for four people to get life-saving kidney transplants in Georgia, Oklahoma & Washington State. For 33 years, Elaine was a teacher of elementary, middle & high school, a nutrition teacher, an admissions director, and a middle school dean. From 2016-2022, she was a Professor and Program Director of the Peace Corps Fellows Program at Teachers College, Columbia University. Elaine is a volunteer mentor for helping kidney disease and other patients transition to a primarily chronic disease preventing diet. For the National Kidney Foundation, Elaine was on the National Kidney Foundations’s Community Advocacy Committee for 3 years and cohosted both a workshop and a cooking demonstration about the benefits of healthy eating to promote kidney health. Elaine is an artist who has painted eleven school murals & wrote the book, "Be the Parent You Wish You Had."
Ned Brooks
Ned Brooks is a non-directed kidney donor and retired businessman. Ned founded the National Kidney Donation Organization (NKDO) in 2016 with the idea that no one can speak with a potential kidney donor as well as someone who has donated themselves. NKDO is now the largest kidney donor advocacy organization in the country, with over 50 living donors who mentor donor candidates at more than 40 transplant centers across the country. NKDO has reached out to 25,000+ donor candidates this year and has facilitated 600+ transplants. Despite the success of NKDO and other advocacy groups promoting living donation, the number of living kidney donors in this country remains below 6,000, with almost 100,000 patients awaiting a transplant. The only viable solution is for the government to stimulate living donation by removing disincentives for donors in a manner that is neither coercive nor exploitative, and it is to this end that Ned has joined with Elaine, Matt and Cody to found the Coalition to Modify NOTA.
Cody Maynard
Cody is a non-directed kidney donor who served as the Director of Research and Policy for the National Kidney Donation Organization for 3 years. Cody has presented at transplant conferences including the European Society of Organ Transplantation’s Conference on Ethical Legal and Psychological Aspects of Transplantation, and the University of Chicago’s Symposium on The Future of Living Donor Kidney Transplants.He has written op-eds, met with legislators, and interviewed over 100 kidney donors. Cody was also a health care strategy consultant at Deloitte Consulting, and now helps lead the transplantation strategy for a value-based care organization as Senior Manager of Strategic Operations Cody also enjoys hobbies such as skydiving, painting, pickleball, rock climbing, CrossFit, and has traveled to over 35 countries.
Dr. Matt Harmody, MD
Matt is a non-directed kidney donor and a recently retired physician, the latter now allowing him to dedicate more time to kidney donation advocacy. His kidney journey started when, while an engineering undergraduate student, his father suddenly developed end-stage renal disease. After several years of dialysis and a failed deceased donor kidney transplant, the disease took his life. This experience led Matt to return to medical school and eventually become an emergency physician. Matt took care of dialysis patients nearly every day of his twenty-year career. In 2017, he was a non-directed kidney donor. Since then, he has given presentations to local organizations on his experience as a donor. He has become a mentor with NKDO. He has also recently been invited to be a member of the Living Donor Steering Committee, a newly created sub-committee of the Strategic Registry of Transplant Recipients (SRTR), the data collection arm of HRSA’s Division of Transplantation. The Committee is charged with developing recommendations for the most appropriate long-term follow-up of kidney donors. Matt enjoys endurance racing, including running ultramarathons and competing in adventure races. This interest and his donation led him to join a team of 21 other living kidney donors that summited Mount Kilimanjaro on World Kidney Day in March 2022, to bring awareness to living donation, demonstrate what is possible post-donation, and to launch initiatives which inspire, support, and educate people about the experience of living donation.
Our History of Public Awareness Campaigns
Ned Brooks’s TedTalk - viewed by tens of thousands
Public Awareness and Advocacy Efforts
Public Service Announcement Campaign on Kidney Donation
In 2019, Waitlist Zero developed a public service announcement (PSA) campaign focused on raising awareness about living kidney donation.
The video reached tens of thousands of viewers through extensive sharing on social media platforms. Approximately 150 individuals contacted our team to learn more about becoming a donor. Members of our donor network personally coached interested individuals through the evaluation process and next steps.
Despite this significant outreach effort and substantial public interest, no individuals ultimately completed the donation process as a direct result of the campaign.
This experience highlighted a critical reality: while many people express initial interest in living kidney donation, the conversion rate from awareness to actual donation remains extraordinarily low.
National Media and Television Appearances
Waitlist Zero and its leadership have participated in multiple national media appearances to increase public awareness about the kidney shortage and living donation.
Our Co-Founder, Elaine Perlman, donated a kidney to a stranger after her son, Abie, became a nondirected donor at age 19.
To help humanize the issue and educate the public, Elaine participated in a televised reunion between Abie and his recipient, a 21-year-old young man whose life was saved through transplantation.
We have also collaborated with colleagues at the National Kidney Donation Organization (NKDO) to facilitate additional television appearances, including on Good Morning America.
Successfully Advocated for the New York Living Donor Support Act
Waitlist Zero successfully advocated for passage of the New York Living Donor Support Act, legislation championed by Elaine Perlman.
The law provides reimbursement to New York living organ donors for expenses incurred as a result of donation.
Although removing financial burdens is an important step toward supporting donors, living kidney donation nationwide has remained stagnant or declined over the past two decades despite numerous efforts to make donation financially neutral.
This experience reinforced the conclusion that eliminating donor expenses alone is unlikely to fully address the kidney shortage.
Unanimous Passage of the Honor Our Living Donors Act
Waitlist Zero also successfully advocated for passage of the Honor Our Living Donors Act, which passed unanimously in the United States House of Representatives and was signed into law in February, 2026.
The legislation helps remove financial barriers for living organ donors by ensuring that only a donor’s income, not the recipient’s income, is considered when determining eligibility for federal donor assistance programs. Under prior policy, some willing donors were denied support because the organ recipient earned above certain income thresholds, even when the donor themselves faced financial hardship.
The Honor Our Living Donors Act represents an important step toward greater fairness and accessibility in living organ donation. It helps reduce the financial burden associated with donation and supports lower- and middle-income Americans who wish to donate a kidney or other organ to save a life.
At the same time, our experience advocating for both state and federal donor support legislation reinforced a broader conclusion: while removing financial barriers is critically important, and is largely in place for at least 70% of donors, financial neutrality alone has not been sufficient to solve the national kidney shortage. Despite decades of educational campaigns, donor protections, reimbursement programs, and public awareness efforts, thousands of Americans continue to die each year waiting for a kidney transplant.
Presentation at International Transplant Conference
Our team presented research at the Ethical, Legal and Psychological Aspects of Transplantation Conference.
We conducted a psychometric analysis of more than 150 nondirected kidney donors to better understand the personality traits and motivations associated with willingness to donate a kidney to a stranger.
The goal of this research was to improve outreach efforts by better understanding how to communicate with individuals potentially open to donation.
The presentation was titled:
“Take Us Off Your Pedestal: Normalizing Non-Directed Kidney Donation.”
Despite extensive outreach, education, and normalization efforts over many years, nondirected kidney donation has not expanded at a scale sufficient to address the national kidney shortage.
Outreach at Conferences and Health Expositions
Waitlist Zero has promoted living kidney donation awareness through tabling and educational outreach at conferences, health expos, and public events.
During these conversations, many individuals expressed confusion between living organ donation and deceased organ donor registration, often responding:
“I’m already an organ donor.”
While outreach efforts generated interest and many individuals requested additional information, the percentage who ultimately pursued donor evaluation—and the percentage who ultimately donated—remained extremely small.
Our experience across public awareness campaigns, educational outreach, policy advocacy, and donor mentorship has consistently demonstrated the same conclusion: education alone is insufficient to solve the kidney shortage at the scale required to save the thousands of Americans who continue to die waiting for a transplant each year.
That is why the End Kidney Deaths Act is so necessary. After years of firsthand experience working to increase living kidney donation through education, mentorship, outreach, public awareness campaigns, and financial neutrality efforts, we have concluded that these approaches alone are insufficient to produce the number of donors needed to end the kidney shortage. The End Kidney Deaths Act introduces a carefully regulated, government-supervised incentive structure designed to dramatically expand the pool of willing nondirected donors while maintaining rigorous medical and psychosocial screening standards. Without a major policy innovation, thousands of Americans will continue to die each year waiting for a kidney transplant that modern medicine already knows how to perform.

